Last week we traveled to Johns Hopkins to see Dr. Wood. The drive up went smoothly and the only trouble we had was actually following the GPS to the right street to find the parking garage. The children's clinic is in a pretty bad area so we were careful to find the correct garage. Once we got to the building and found our way to the entrance we found the area to check in. As I was checking in the lady asked me what Bug's food allergies are. I listed a few and said I heard that Dr. Wood was supposedly the best. And she laughed, and said not supposedly, he is the best.
The waiting room had a little play area and there were other little kids there with a variety of conditions. Bug had fun playing with some of the toys and watching some of the bigger kids play. When they first called him back they took his height and weight. And as you guessed, he cried. As we were walking out of the area to wait to get called back to see the doctor, Bug said all done to the nurse and then told her "I love you," through his tears. She was just smitten and gave him a big hug and then smiled at him any time she was calling other kids back.
Once we got called back to meet with the doctor we gave his entire medical history to one of his assistants. You should have seen the look on her face when we told her about the local emergency care center not having epi-pens. Anyway, we gave her his history and I had a copy of all of his allergy testing and she photocopied it and gave it all to Dr. Wood.
When Dr. Wood came in he took his time to meet with us and answer all our questions. He explained how the allergies trend at Bug's age and our plan of action going forward. We are going to have RAST blood work done again in 8 months and hopefully his milk and egg numbers will go down enough to trial them in a baked format. He said that this is the age where we'll learn a lot about if his allergies are going to trend towards better or worse. We are of course hoping for better!
We asked some questions about latex as Bug's avocado, banana, kiwi, passion fruit allergies could all be related to latex. The good new is that we can keep the latex paci's he uses. He said if he ever has surgery to make sure we are latex free, which is what we had done for his ear tube surgery.
We also asked about Oral Allergy Syndrome (OAS) which could have been another explanation for the fruit allergies and he said definitely not. So that was also good to know.
He told us we don't have to get rid of wheat. Our local allergist had suggested getting rid of wheat to help with Bug's weight gain but didn't provide a warm fuzzy as to the reason why. We hadn't gotten rid of it because we definitely wanted a second opinion. It was great to hear that we can keep it.
He also told us not to worry about rice, which we were sort of thinking but hadn't fully added rice back to his diet. Not that it's worth anything nutritionally, but still, we certainly don't have to avoid it.
And he told us that we should try coconut. He's had it in baked products but not as yogurt or milk or that sort of thing. We still need to try it; we totally chickened out this weekend!
As for helping him grow, our pediatrician gave us permission to try a nutritional supplement called Bright Beginnings Soy Vanilla Supplement. We picked up that day and gave it to Bug over the weekend and he loves it! Dr. Wood said if we give him 2 a day that we don't need to give him a vitamin. He also said to focus on adding more protein to his diet and to aim for 25 grams a day. The good news is that the supplement gets us half way there, which is great as Bug is not a great eater.
It was a huge relief to finally have this appointment (it took 6 months to get in including 1 cancellation because Bug was sick) and to get really good answers and a clear way forward. Best of all, we have hope. And maybe hope isn't a good thing with food allergies but we at least have hope that there's some method that will help us determine when we can try out foods on our bad list.
Oh, and second best of all is that Dr. Wood said we are doing everything right! What a huge compliment!
So for now, our list of allergies is: dairy, eggs, peanuts, tree nuts, sesame seed, banana, avocado, kiwi, passion fruit